Lemonick: The Perpetual Now

Cover: Perpetual Now

Cover: Perpetual Now

THE PERPETUAL NOW:
A STORY OF AMNESIA, MEMORY, AND LOVE

Michael D. Lemonick
Doubleday; February 7, 2017; $27.95
ISBN-10: 0385539665; ISBN-13: 978-0385539661

Lemonick reports:

My book tells the story of Lonni Sue Johnson, an accomplished artist, musician, pilot and organic dairy farmer who came down with viral encephalitis in her late 50’s and became what neuroscientists call “densely amnesic.” Like the celebrated H.M., she can no longer remember more than a fraction of her past, and can’t form new memories to carry into the future. I write about her life before amnesia, what happened, and what her life is like now. I also write about the history of memory research, and of the new research on Lonni Sue — someone with a far richer set of talents than any amnesia victim studied to date — which is helping neuroscientists deepen their understanding of how memory works.

The book came about when Lonni Sue’s younger sister, Aline, came up to me on the street one day and asked if I’d heard about the tragedy that had struck her family. I knew Aline Johnson from middle and high school (seeing her face triggered a rush of memories — the experience that I describe in the book’s first chapter).

Michael D. Lemonick, Photo by Eileen Hohmuth-Lemonick

Michael D. Lemonick, Photo by Eileen Hohmuth-Lemonick

I was invited into the family home, introduced to the scientists are studying Lonni Sue, and given the extraordinary opportunity of spending time with Lonni Sue herself, whose warmth and graciousness belied the profound brain damage she had suffered. Aline and her mother also introduced me to Lonni Sue’s friends from childhood and through her adulthood; together they all helped me reconstruct a life Lonni Sue herself no longer can recall.

I already had an agent, who helped me refine my proposal and then sell it, so that part was straightforward, if not easy. For the book itself, I had to do my research on weekends and during vacations. Fortunately, the Johnson family and I both still live in Princeton, the town where Lonni Sue and Aline grew up, which made logistics easier.

What surprised me most was that I’d assumed someone with a badly damaged memory would have lost most of her “self,” since we think of our memories as fundamental to who we are. It wasn’t that way at all: Lonni Sue is at her core essentially the same charming, engaging person she was before her illness. It was a privilege to be given a glimpse into her remarkable life.

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Advance Copy

The path from idea to book may take myriad routes. The Advance Copy column, started in 2000 by NASW volunteer book editor Lynne Lamberg, features NASW authors telling the stories behind their books. Authors are asked to report how they got their idea, honed it into a proposal, found an agent and a publisher, funded and conducted their research, and organized their writing process. They also are asked to share what they wish they’d known when they started or would do differently next time, and what advice they can offer aspiring authors. Lamberg edits the authors’ answers to produce the Advance Copy reports.

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Publication of NASW author reports in Advance Copy does not constitute NASW's endorsement of any publication or the ideas, values, or material contained within or espoused by authors or their books. We hope this column stimulates productive discussions on important topics now and in the future as both science and societies progress. We welcome your discussion in the comments section below.

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